Helping Daniel

What was Daniel’s situation before working with Advocacy Focus?

Daniel* had moved from his supported living home to a care home after urgent repairs were needed at his previous home. The move happened very quickly, and his social worker did not think the care home would be the best place for him to live permanently.

Daniel has Down’s syndrome and a severe learning disability. He could only say and understand a few words, which made it difficult for him to communicate what he wanted and needed. He often became upset, and staff found it challenging to understand what was causing this.

What did the Independent Advocate do to help?

The Advocate took time to get to know Daniel and understand how he communicated. They observed how he responded to different activities and situations, learning about the things he liked and disliked. They also spoke with staff to build a fuller picture of how Daniel was getting on.

Over time, staff noticed significant changes in Daniel. He became calmer and was less likely to become upset. He also became more comfortable accepting support with tasks such as personal care.

Daniel made such positive progress that his dentist decided he no longer needed a planned operation. He also began learning new words and recognising staff members’ names. For example, he would say “Dennis” and “Coke” when referring to a staff member who brought him his favourite drink.

The Advocate shared what they had learned about Daniel and the improvements in his quality of life with his social worker.

What was the outcome?

The social worker visited Daniel alongside the Advocate to review his care and support needs. Together, they considered the changes in Daniel’s wellbeing and quality of life since he had moved to the care home.

It was agreed that Daniel’s quality of life had improved, and he remained living in the care home.

The social worker also determined that Daniel no longer needed as much one-to-one support. This gave Daniel greater independence and freedom during the day.

Why was advocacy support so effective?

The Advocate took the time to understand Daniel as an individual and recognise the different ways he communicated. Rather than relying only on spoken communication, they observed his behaviour, responses and interactions to understand what mattered to him.

By building a genuine understanding of Daniel and sharing this with the professionals involved, the Advocate helped ensure that his views, preferences and experiences were considered when decisions were being made about his care and support.

As a result, Daniel was able to remain in an environment where he was making positive progress, while also having greater independence in his daily life.

*Name changed to protect the people we support.